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Our Children

Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.

Cody-Lewis steward

Age 11

Hospital: Royal Brompton Hospital

Note: Bear pictured may not be the bear given to the child (most of the time it is though)

Cody-Lewis steward’s Medical condition...

My son has been tube fed all his life and has now got terminal lung disease he is on oxygen 24/7and and on a bipap breathing ventilator he also can’t weight bare so is in a wheelchair pretty much every woken hour of the day he has daily struggles and worries but he tries to fight these his conditions are acta1 gene Nemaline Rod Myopathy with secondary lung disease called bronchitis,restricted lung disease,emphysema his lungs are very poorly and with out medical oxygen he wouldn’t be alive his lungs are so poorly that at night his bipap mask takes over on his breathing as it’s so shallow he don’t actually take a breath and because his pressures are so high he has even had tears in the lungs called phnewmforax he is tube fed due to everything he takes orally goes strait into his lungs and he has to have a port-a-cath a small tube that sits just on top of his heart to administer antibiotics and to take blood as his veins just collapse plus he LOVES teddy’s they are is favourite toy ever

A bit about Cody-Lewis steward...

Cody is a loving little boy that loves teddies and little fiddly toys he is always wanting to make people laugh and help them when they are scared’worried or nervous about anything he likes to be a little helper when he can and is such a loved little boy his hobbies are cuddling his siblings and playing with his teddies and colouring

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Mere Brow

07718 985264