Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.
Ivy Stones’s Medical condition...
Ivy has recently been diagnosed with a chromosome disorder, microdeletion 16p13.11. This can cause numerous life-long issues including epilepsy, learning disabilities, speech issues and autism. This also explains a lot of Ivy’s current conditions, including hypotonia (low muscle tone), visual impairments (reduces vision, nystagmus and ocular motor apraxia) global development delay, absence seizures, chronic constipation and being fed via an NG tube. She currently cannot sit unaided, crawl, grasp or weight bare.
A bit about Ivy Stones...
Ivy is a joy, never without a smile on her face and although she is unable to sit yet, she loves to try and roll! She loves lights, especially her bubble fish tube, and anything black and white as they’re easy to see. She is very tactile and loves feeling new textures, and she loves to snuggle in bed on a morning with mummy and daddy and chat away!
Follow Ivy Stones's journey here: Www.facebook.com/ivyshypotoniajourney
If you'd like to put a smile on a Ivy Stones’s face today, simply fill out this form: