Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.
Luna-mae Burton-mann’s Medical condition...
Luna has had a rough few months, she has many diagnosis however we haven't found a cause. Very early on she was diagnosed with reflux, due to vomiting, however recently after many studies and test reflux has been ruled out she has Gastroparesis. A paralysed stomach. We are now waiting for a pegj to be fitted and it's highly likely she'll be pegj fed the rest of her Life. Luna is almost a year old and 13lb due too vomiting and the Gastroparesis and dysphagia (unsafe swallow). Luna also has Hypotonia, which is poor muscle tone, at current she has just learnt head control and to roll over. She is a very floppy baby. Luna sadly also suffers seizures, and Dystonia (painful spasms) daily. Luna has potentially got a sight impairment and sleep apnoea however these are still under investigation.
A bit about Luna-mae Burton-mann...
Luna is a very happy 11 month old. Everyone is her friend, she'll smile ear to ear and cuddle into anyone, even if she's just met them. She loves lights and music. She also absolutely adores her big brother harvey. Luna has a very strong personality of she doesn't nst want to do something or doesn't like it she'll let you know.
Follow Luna-mae Burton-mann's journey here: www.facebook.com/Follow-The-Inchstone-One-Day-At-A-Time-Luna-maes-Journey-2065455740419885/
If you'd like to put a smile on a Luna-mae Burton-mann’s face today, simply fill out this form: