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Our Children

Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.

Ela Senel

Age 1

Hospital: Royal Manchester Childrens Hospital

Note: Bear pictured may not be the bear given to the child (most of the time it is though)

Ela Senel’s Medical condition...

Ela has been diagnosed with Diamond blackfan anaemia syndrome which entails regular 2 weekly blood transfusions and weekly blood tests. She is unable to make her own red blood cells and her bone marrow is not functioning . She requires a bone marrow transplant and we are awaiting date for her port to be inserted. Due to her small frame she has breathing difficulties and always so chesty which gives her severe reflux which at the moment medication is not settling her projectile vomitting. She is under weight, development is slow at 7 months old she can't even roll to her side yet and is unable to have tummy time due to her sickness. A port is required as doctors are unable to gain access to her veins and unfortunately they have attempt 10-12 tines which causes great stress for Ela and the consultants. Steroid treatment and further treatment is necessary once she is 1 as they would like her to grow naturally before stunting her growth with some medication.

A bit about Ela Senel...

Even though ela is extremely anaemiac and is unable to contribute to most activities. Ela loves bright colours and often plays with her 3 year old sisters my little ponys . She loves touching the hair or anything that has a crackling noise. She is a happy baby when her blood hasnt dropped and does her best to smile even when feeling so low.

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94 The Gravel
Mere Brow

07718 985264