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Our Children

Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.

Bedwyr Alun Davies

Age 4

Hospital: Ysbyty Gwynedd Hospital

Note: Bear pictured may not be the bear given to the child (most of the time it is though)

Bedwyr Alun Davies’s Medical condition...

Bedwyr has very complex additional needs. He has Coffin-Siris syndrome which affects less than 300 worldwide. Bedwyr has significant Learning Disability with no understanding of language nor communication skills. Bedwyr is tube fed due to unsafe swallows and has chest infections and upper respiratory infections often. He has low muscle tone as well as hypermobility but is mobile and is attempting to run! He has Myoclonic Jerks in light sleep and sleep apnea in deep sleep.

A bit about Bedwyr Alun Davies...

Bedwyr has limited play skills and resists touching anything as he is very sensory orientated. He loved to watch Baby Tv whilst spinning his dummy on a strap. Bedwyr is a tickle monster and loves to play rough and tumble and be tickled. At times Bedwyr will observe the sensory toys around him.

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94 The Gravel
Mere Brow

07718 985264