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Our Children

Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.

Otis Glyn Jones

Age 1

Hospital: Singleton Hospital

Note: Bear pictured may not be the bear given to the child (most of the time it is though)

Otis Glyn Jones’s Medical condition...

My grandson was born at 30 weeks by emergency c section. he was so poorly but amazingly was able to breath with little support. During his 7 weeks in sbu we found out Otis has periventricular leukomalacia (PVL) and the damage to his brain is significant, he has also been diagnosed with cerebral palsy. At 8 months he can’t sit up or reach for a toy but after physio sessions with Bobath he was able to open his left hand and for the first time yesterday we heard him laugh, proper baby laugh. I know that he has such a difficult road ahead, in his tiny little life he’s already been through so much. I believe he has spastic cerebral palsy, as he is 8 months old , the pvl and further physical and cognitive problems are impossible to diagnose . We are unsure if he has problems with his sight but the physio centre (bobath) believe it might be the brain trying to keep up with the body

A bit about Otis Glyn Jones...

Otis loves interactive nursery rhymes, like round and round the garden. We play with him with his sensory toys but only about 10 minutes at at time as he gets tired , and grumpy. He has the most perfect smile I have ever seen and he most definitely knows his own mind, he loves a little chat

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94 The Gravel
Mere Brow

07718 985264