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Our Children

Be Brave Bears is a charitable organisation run by volunteers who send personalised keepsake bears to children who are terminally ill or have life limiting conditions. Each of our bears is sponsored by businesses, groups or families, meaning these bears are free of charge to the children. Once complete each bear is placed in a special keepsake bag and given to the child complete with a numbered certificate. Once the child has received their bear the sponsor will receive a thank you photograph via e-mail of the completed bear and a sponsorship certificate with the name of the child who you have sponsored. Each bear is allocated a number and will appear on our Roll of Honour. If the child on this page has already been sponsored, but due to the timing of the previous sponsorship it has not yet been removed from this area, your sponsorship will be automatically allocated to the child next on the list (Priority order). This seldom happens but we must highlight that it can occur.

Alex Fraser

Age 0

Hospital: Leeds General Infirmary

Note: Bear pictured may not be the bear given to the child (most of the time it is though)

Alex Fraser’s Medical condition...

Hypoplastic Left Heart Syndrome Vocal Chord Palsy Unsafe Swallow/Aspirates Severe GORD NG fed (awaiting gastrostomy/fundoplication) Large clot in left ventricle

A bit about Alex Fraser...

Alex was born as a twin at 36 weeks. Alex was diagnosed with hypoplastic left heart syndrome at when he was three days old and has spent almost half of his nine months in hospital. He had his Norwood operation when he was nine days old and spent 16 days fighting for his life in PICU. He was on ECMO for six days and as a result required dialysis too. Alex spent a total of seven weeks in hospital. Four weeks after being discharged we found out that Alex’s scar had become infected, they removed a large amount of pus and then found a large blood clot in his left ventricle for which he has daily blood thinning injections. Exactly six months from the date of Alex’s Norwood, he went down for his Glenn. The operation was almost cancelled after finding him full of pus inside....luckily he was cleaned up and the surgery could go ahead. A week after leaving he was then re-admitted due to severe vomiting and there is now a concern about allergies to milk, soya, wheat and tomatoes and he is on special milk. Most recently Alex was rushed into HDU with bronchiolitis and was struggling requiring 18L of oxygen at 80% - He and his twin spent 9 days in hospital. Alex has also had a number of invasive procedures and is now awaiting a new date for his gastrostomy and stomach surgery which had to be cancelled and held off for atleast six weeks due to the bronchiolitis. Despite all of these hospital stays, his daily injections and all of his complex care needs, Alex is so happy and always manages to smile. He is a little miracle and touches the hearts of everyone that meets him. He adores his twin brother and his four older siblings (6, 8, 10 & 14) who are so proud of him and how far he’s come. I would love for him to receive a special bear to celebrate his strength. We are also supported by Forget Me Not Children’s Hospice in Huddersfield. Alex loves elephants.

Keep up to date up with all our latest bits and pieces:

94 The Gravel
Mere Brow
Preston
Lancashire
PR4 6JX

07718 985264
hello@bebravebears.co.uk